Today is World Rare Disease Day. 1 in 10 people are affected by a rare or genetic disease, and yet the support for those (and their families) that are afflicted by a genetic condition is minimal. Today is all about raising awareness for the millions of people worldwide who are affected by their rare genes.
My own son is rare. He has a duplication on his second chromosome which has caused some developmental delays, but also some gifts. He is an amazing child despite (and because of) his struggles. I love my rare boy!
Motherhood And Other Adventures 
Hooray for Trevor! I’m glad you posted this as I didn’t know there was a special day for rare diseases. How are things going for you as a mom of two?
It’s going alright, except for being a zombie. I’m not sure if it’s due to the IUGR and being small or what, but at 4 months old Paige still nurses like a newborn and it’s exhausting. Balancing her needs with Trevor’s needs can be tough too. Babywearing is a lifesaver!